Author: KCCure

Voice of Kidney Cancer – Brianna Stephens

I am feeling thankful that today my husband went out with his dad (we are neighbors) and caught a bunch of bass and some crappies. He was really happy when he got back. After dinner he said that since his cancer diagnosis, he felt stress-free for the first time while out fishing. My heart was filled with joy and sadness all at once. I just want to buy this man a boat or take his place in this jour...

COVID-19/Kidney Cancer Patient Survey

In the wake of the COVID-19 outbreak, governments and hospitals systems are struggling to determine how to continue to provide care when resources are seriously compromised. KCCure ran a patient survey from March 22 to March 25, asking patients to share their experiences, anxieties and concerns about managing their cancer diagnosis during the pandemic. Over 500 patients responded to the survey. We...

COVID-19 Update – Kidney Cancer Drug Supply

As the COVID-19 crisis has unfolded, kidney cancer patients have been impacted in many ways. Many patients have expressed concerns about kidney cancer drug supply issues as a result of the pandemic. Below are statements from companies producing the most widely used treatments for advanced RCC. At this time, all information indicates that supply lines for kidney cancer treatments remain intact. We ...

COVID-19 Update – Elective Surgery

As the COVID-19 crisis has unfolded, hospitals around the country are announcing delays, and in some cases, even banning “elective surgeries.” The Centers for Medicaid and Medicare Services (CMS) has released guidance for hospitals on limitations for these procedures to preserve resources during the COVID-19 pandemic. What is elective surgery? Many patients are surprised to learn that most surgeri...

Voice of Kidney Cancer – Denise Thompson

It’s interesting and bonding to read about similar and difficult experiences we are all having during this pandemic. But the hardest thing for me right now is my own mindset. I guess I didn’t come into the pandemic with great reserves of strength. Last July, we moved three to four hours away from our older son and his daughters, who are now in college, as well as our own daughter, in o...

Voice of Kidney Cancer – Joanne DiFulvio

In 2006, I was recovering from unrelated surgery when I became ill. I went to the ER where a CT exam was ordered to see if I had torn internal sutures. It was during that exam when it was discovered that I had a 6CM mass on my left kidney. They call it incidental finding.  I was terrified. I was only 58 years old at the time. My own mother passed away from cancer. All I could think of is how ...

Voice of Kidney Cancer – Joanne Muscat

Today was my 5 year diagnosis anniversary. Wow, what a journey… Considering they only gave me an 8% survival rate for stage 4 metastatic RCC. I’m not in the clear and never have been, but it’s been an amazing experience. I’ve traveled the world, and lived, laughed and loved like never before. Today was also my ct scan day coincidentally. I get results on Thursday.  These re...

Voice of Kidney Cancer – Lisa Condon

My cancer story started June 2nd, 2018. I was 47 years old at the time and a busy full-time working wife and mother of 4 children ages from 13-30 living in Minneapolis, Minnesota.  On May 29th, 2018, I went into my local Urgent Care as I had been struggling with a reoccurring bladder infection and some constipation. The urgent care physician ran the appropriate tests, and everything came back norm...

Voice of Kidney Cancer – Joe Torpey

I am 66 years young. I was incidentally diagnosed in the emergency room in Sept 2019 while getting an ultrasound for a shooting pain on my right side from under my arm to my waist. The doctor came in and said we don’t see anything that would cause this pain, possibly a pulled muscle, but we did find a 6.5 cm growth on your left kidney that you should get checked out. The urologist I chose was Dr. ...

Voice of Kidney Cancer – Constance Robinson

My name is Constance Robinson. I was diagnosed with chromophobe renal cell carcinoma (chRCC) in 2006 at the age of 30.  Unfortunately, I didn’t catch it fast enough to save my right kidney. I remember the symptoms starting with pain in my right side. I didn’t think anything of it at the time because I used to work out all the time. I thought I had pulled a muscle from my TaeBo exercise routine.&nb...

Voice of Kidney Cancer – Joyce’s Story

Four years ago today my husband went to the emergency room for what I was certain was kidney stones. Flank pain and bloody urine that came on quickly. Everyone at the ER agreed until the CT scan came back. I’ll never forget the first time we heard the diagnosis. Kidney cancer. That night was one of the longest in our lives. I remember curling up next to him on the stretcher trying to find some com...

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