Author: KCCure

Voice of Kidney Cancer – Mary Kammerer-Miskovsky

Our life changed forever when my husband Rick was diagnosed with Stage IV aggressive clear cell renal carcinoma on New Years Eve of 2018. In the beginning, all I knew was fear until I joined KCCure. The amazing support we have received is beyond anything I could ever have imagined. Because of KCCure we went for a second opinion and found an AMAZING RCC oncologist, Dr. Chuck Drake, at New York Pres...

Voice of Kidney Cancer – Naomi Henley Grossman

So it’s July and it’s one year since my life changed. This was the day my doctor told me my hemoglobin had crashed to 5.2 and I had to go to the hospital for a blood transfusion. Even then, I had no clue that my life would never be the same again. It took another six weeks till they found the 15 cm cancerous tumor on my left kidney. After my kidney was removed I had 3 months of blessed remission b...

Voice of Kidney Cancer – Chester’s Story

I was diagnosed with kidney cancer mid-April 2019.  I was scared and had no answers. Having little experience with cancer, I basically thought I was dead and leaving my wife and 3-year-old all alone in the world. The first surgeon I met with told me they would need to do an open incision about 12-18 inches across my body. He told me it was the only option. They weren’t talking to me abou...

Voice of Kidney Cancer – Ted Engel

We buried my brother in law yesterday. Five years ago, he drove me to get one of my first infusions in an RCC clinical trial. For me, the drug that was being tested resulted in a complete response for my stage IV disease. Eighteen months ago, he was diagnosed with stage IV lung cancer. The irony is that he also had the same immunotherapy treatment that I had. (now FDA approved for Lung Cancer but ...

Voice of Kidney Cancer – Christiane Waked

Change your perspective and make cancer a thriving experience to become your best self. In October 2006, I was sitting on a bench in Paris, crying my eyes out while it was pouring rain on me, as if the sky was feeling my pain and sobbing with me.  Earlier that day, a man in a white blouse articulated a two-syllable word that every sensible person fears: “Cancer”, he said, “Death”, I thought. ...

What is No Tie July?

When it comes to kidney cancer, a tie isn’t good enough. We need a win. Join our month-long fundraising effort, No Tie July, and help us raise one year of life-saving research funding in just one month.

Translocation Renal Cell Carcinoma (tRCC) Research Initiative

Translocation renal cell carcinoma (tRCC) is a rare subtype of renal cell carcinoma occurring in less than 5 percent of patients. Initially found primarily in children, incidence of tRCC found in adults is rising. Because it is so rare, research to identify the best treatments for tRCC patients is severely lacking.  The Translocation RCC Research Initiative (TRRI) is worki...

A Day of Kidney Cancer Talk – June 20th – World Kidney Cancer Day

KCCure and Kidney Cancer Canada join forces to bring patients and caregivers A DAY OF KIDNEY CANCER TALK on World Kidney Cancer Day! A DAY OF KIDNEY CANCER TALK is 45-minute “talk” sessions scheduled throughout the day with kidney cancer specialists in Canada, United States and Europe. We’ll be featuring 45 minute sessions throughout the day with experts from the U.S. and Canada. No presenta...

Voice of Kidney Cancer – Carol’s Story

In April 2019 the Food and Drug Administration (FDA) approved Keytruda (pembrolizumab) in combination with Inlyta (axitinib) for the frontline treatment of patients with advanced renal cell carcinoma (RCC).  We’re grateful to brave patients like Carol who participated in a clinical trial and helped make this treatment a reality for advanced RCC patients.   I have been retired for more than 5...

NIH Clear Cell Kidney Cancer Trial

NIH Trial – HERV-E TCR Transduced Autologous T Cells in People with Metastatic Clear Cell Kidney Cancer.    Good News!  Since I last shared news of this exciting clear cell kidney cancer trial it has continued to actively recruit.  If you are interested there are still spots available.  Eligibility criteria include: Being at least 18, having clear cell RCC, measurabl...

Voice of Kidney Cancer – John Coulthard

Never give up! I was diagnosed April 2016 with bilateral stage 4 RCC at 63 years old. Zero symptoms so it was a bit of a surprise. Two surgeries – a full nephrectomy and a partial – by then one tumor was basketball sized, at Ochsner in New Orleans. Luckily I was able to retire and get full disability and went onto oral medication (Cabometyx). At this point I had not really realized tha...

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