The Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to eliminating suffering and death due to kidney cancer through increased funding to accelerate research that will lead to a cure for all patients and prevent future kidney cancer diagnoses.
The Challenges We Face
It’s estimated that more than 60,000 people will be diagnosed with kidney cancer in the United States this year and more than 14,000 people will die from the disease. For reasons that we don’t know, incidence of kidney cancer has been increasing since the 1990s. Kidney cancer remains the deadliest of all urological malignancies.
Why We Exist
Despite these facts, kidney cancer research is vastly underfunded. According to the American Cancer Society, of the more than 700 research grants awarded in 2017, only 11 grants totaling less than $1.5 million out of over $390,000,000 awarded went to kidney cancer research.
What We Do
We fund high-impact high-risk kidney cancer research through a process that is peer reviewed by an expert team of kidney cancer specialists, patient, caregivers and kidney cancer advocates. These grants provide sources of funding that otherwise wouldn’t be available to these researchers.
Advances in treatment and new research related to the management of RCC have dramatically changed the landscape for patients and doctors. We create educational materials designed to answer questions that patients are asking wherever they are in their diagnosis as well as updated information as new treatment and research becomes available.
When faced with a new cancer diagnosis, our research shows that patients experience trauma, grief and feelings of isolation. To help combat the emotional toll of cancer, we encourage patients to connect with one another and to share their stories. These actions can help families impacted by kidney cancer feel less alone and are an important component of survivorship.
In-person cancer support groups can be hard to find for kidney cancer patients because it’s a rare disease. We encourage patients to connect with others through on-line patient communities; including:
Facebook Communities: Renal Cell Carcinoma, Kidney Cancer Sucks But We Will Win, Kidney Cancer – Patients, Survivors and Caregivers, Young Adult Kidney Cancer Survivors, Chromophobe Kidney Cancer Support Group, Papillary Kidney Cancer Support Community, Unclassified Kidney Cancer Support Community.
We believe strongly in collaboration. Our partner organizations include:
Please note: The material on this site is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment for a specific medical condition. You should not use information on this website to diagnose or treat a health problem or disease and should consult with a qualified healthcare provider with any questions or concerns you may have regarding your condition.