The Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to eliminating suffering and death due to kidney cancer through increased funding to accelerate research that will lead to a cure for all patients and prevent future kidney cancer diagnoses.
The Challenges We Face
It’s estimated that more than 60,000 people will be diagnosed with kidney cancer in the United States this year and more than 14,000 people will die from the disease. For reasons that we don’t know, incidence of kidney cancer has been increasing since the 1990s. Kidney cancer remains the deadliest of all urological malignancies.
Despite these facts, kidney cancer research is vastly underfunded. According to the American Cancer Society, of the more than 700 research grants awarded in 2017, only 11 grants totaling less than $1.5 million out of over $390,000,000 awarded went to kidney cancer research.
Because kidney cancer is a rare disease, we find that many kidney patients struggle with finding information about their diagnosis and find it difficult to connect with others facing the same challenges. Research has shown that patients with kidney cancer suffer from higher rates of emotional distress and depression.
What We Do
We fund high-impact high-risk kidney cancer research through a process that is peer reviewed by an expert team of kidney cancer specialists, patients, caregivers and kidney cancer advocates. These grants provide sources of funding that otherwise wouldn’t be available to these researchers.
In addition to funding research, we conduct our own patient centered research aimed at improving the quality of lives of all kidney cancer patients by better identifying and defining the needs and wishes of patients.
Advances in treatment and new research related to the management of RCC have dramatically changed the landscape for patients and doctors. We create educational materials designed to answer questions that patients are asking wherever they are in their diagnosis as well as updated information as new treatment and research becomes available.
When faced with a new cancer diagnosis, our research shows that patients experience trauma, grief and feelings of isolation. To help combat the emotional toll of cancer, we encourage patients to connect with one another and to share their stories. These actions can help families impacted by kidney cancer feel less alone and are an important component of survivorship.
In-person cancer support groups can be hard to find for kidney cancer patients because it’s a rare disease. More information about on-line support groups can be found in our Kidney Cancer Resources Section.
Please note: The material on this site is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment for a specific medical condition. You should not use information on this website to diagnose or treat a health problem or disease and should consult with a qualified healthcare provider with any questions or concerns you may have regarding your condition.