When faced with a new cancer diagnosis, it is common for patients to experience trauma, grief, feelings of isolation and loss of control.
Research shows that patients who participate in on-line health communities receive significant benefits, including:
- Psychosocial support
- Enhanced relationships with doctors
- Increased access to information
But there are also potential risks. Some groups may be more prone to disinformation, predatory scams and conspiracy cures. Poor group composition can amplify statistical bias which can lead to unnecessary anxiety and medical distrust.
KCCure groups are designed to maximize the benefits of shared information while reducing the risk of harmful effects.
Our unique, overlapping communities are built to achieve three objectives:
Provide Support: The needs of people impacted by kidney cancer vary by situation. Our groups are structured to provide individual support, specific for your situation. For that reason, we have groups for different stages of kidney cancer, groups for rare subtypes and a safe space just for caregivers. We know that many people will have multiple situations – so our groups are designed to be overlapping. On average, people belong to two or more communities.
Protect Privacy: KCCure groups are administered to draw in authentic people dealing with kidney cancer and keep fake profiles and spammers out. Our enhanced moderation techniques have reduced harmful disinformation and predatory sales content to less than 0.1% of posts.
Promote Accuracy: Over half of health information seekers site false or misleading information as their biggest concern when trying to find information about their diagnosis. KCCure groups have built in guides to provide up-to-date, evidence-based information so you can be empowered to advocate for the best care.
If you have been impacted by kidney cancer, find the right KCCure community for you.
Small Renal Masses
The Renal Mass Community is a private group for individuals who have been diagnosed with a small renal mass (< 4 cm), have not had surgery or are on active surveillance, and patients diagnosed or treated for a oncocytoma, angiomyolipoma or other benign renal mass.
The 1-2-3 Kidney Cancer Community is a private group for individuals who have a confirmed diagnosis of stage 1, stage 2 or stage 3 kidney cancer. This community is ideal for patients dealing with anxiety related to follow-up surveillance scans.
The Metastatic Renal Cell Carcinoma (RCC) Community is a private group where patients who have been diagnosed with RCC (kidney cancer) that has spread outside the kidney can connect with others and share information about systemic treatment.
The Kidney Cancer Caregiver Community is a private group for people caring for a spouse, relative or friend who has been diagnosed with kidney cancer. We ask that patients refrain from requesting to join this community to provide a safe space just for caregivers.
The Papillary Kidney Cancer Community is a private group for patients and caregivers dealing with a diagnosis of papillary renal cell carcinoma. Around 10% of patients will be diagnosed with this rare subtype.
The Chromophobe Kidney Cancer Community is a private group for patients and caregivers dealing with a diagnosis of chromophobe renal cell carcinoma. Around 5% of patients will be diagnosed with this rare subtype.
Non-Clear Cell RCC
The Non-Clear Cell RCC Kidney Cancer Community is a private group for patients and caregivers dealing with a diagnosis of non-clear cell renal cell carcinoma (RCC). Around 30 percent of patients diagnosed with RCC will have a subtype other than clear cell (the most common subtype).
The Translocation Kidney Cancer Community is a private group for patients and caregivers dealing with a diagnosis of translocation renal cell carcinoma. Less than 5% of patients will be diagnosed with this rare subtype.
Upper Tract Urothelial Carcinoma
The Upper-tract Urothelial Carcinoma (UTUC) Kidney Cancer Community is a private group for patients and caregivers dealing with a diagnosis of UTUC. Patients with UTUC represent roughly ten percent of kidney cancer patients.
Material shared in groups is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment for a specific medical condition. You should not use information shared in groups to diagnose or treat a health problem or disease and should consult with a qualified healthcare provider with any questions or concerns you may have regarding your condition.