Author: KCCure

Voice of Kidney Cancer – Dez Burton

In December 2017 I got diverticulitis for the first time in my life. My gastro doc sent me for a CT scan to see extent of the problem. He called me a few days later to tell me that I had a 5.7cm tumor in my right kidney and told me to see my urologist as soon as possible.  I saw my urologist in early January 2018 and he confirmed from the scan that it looked like clear cell renal cell carcino...

Voice of Kidney Cancer – Larry Garza

In May of 2016 I coughed up blood multiple times. My doctor recommended I go see him to avoid expensive emergency room costs since it sounded like a sinus infection. The next day I went it and alas, I had a sinus infection. For precautionary purposes he ordered a chest scan to rule out any other issues and ease my anxiety. After my scans results came in they found a 5cm mass in my right lung. Bein...

Voice of Kidney Cancer – Carie Gort

August 6, 2019: I was experiencing: A cough I couldn’t shake. Unexplained weight loss. Terrible night sweats. Fatigue. Exhaustion. (Slept from after dinner until morning on weekdays, and all weekend long). and Digestive discomfort.  I KNEW something was not right. Everyone kept saying it was menopause.  My PCP ordered a chest x-ray and blood work.The chest x-ray showed four small nodules in m...

Voice of Kidney Cancer – Robert Grizzell

I was diagnosed with kidney cancer 12/4/07. I had passed out at a Providence Medical Center fundraiser with a room full of doctors. An ultrasound was ordered which showed an enlarged right kidney. This was followed up with a CT Scan which showed an eight cm tumor in the right kidney and several small tumors in my lungs.  I had my right kidney removed right after Christmas. As luck would have ...

Voice of Kidney Cancer – Doug Barrick

I was finally diagnosed in 2017 after a couple of years complaining to my Veteran Affairs (VA) doctor that I didn’t feel right. I finally had to leave the VA and go to a private group. They thought I had a kidney stone again. They did a CT and saw a cyst on my kidney.  The “cyst” was there from a scan years earlier but the doctor wanted an MRI. I almost didn’t go, but my girlfrien...

Voice of Kidney Cancer – Chuck’s Story

My journey started in June 2019. I was 47 at the time, turning 48 in September. I went out for a run with my wife and came back and urinated what looked like pasta sauce! Needless to say, after a bladder scope and CT scan it was determined that I had a 10 cm x 8 cm x 9 cm mass on my left kidney. Scans also showed a horseshoe kidney as a complicating factor.  There were nodules on my lungs at this ...

Voice of Kidney Cancer – Jesse Jacobus

On March 2, 2020, I went to the emergency room with what I was pretty sure was appendicitis. A CT scan confirmed the appendicitis but the docs also informed me that I had a 7.7 cm mass on my left kidney. Renal Cell Carcinoma (RCC).  I had a radical nephrectomy of my left kidney on March 22 (after sweating out whether COVID restrictions were going to cancel my surgery).  Post surgery, my ...

Voice of Kidney Cancer – Brian Rini

Brian Rini, MD is a professor of medicine and chief of clinical trials at Vanderbilt-Ingram Cancer Center (VICC) in Nashville, TN. He is a key opinion leader in the clinical investigation and management of kidney cancer. In honor of Kidney Cancer Awareness Month, Dr. Rini shared some of his views on where the field is today and what we have to look forward to in the future. KCCure: What is the mos...

Voice of Kidney Cancer – Marta Szulc

KCCure is a proud member of the International Kidney Cancer Coalition (IKCC), an independent international network of patient organisations that focus on kidney cancer. Learn more about Marta Szulc, IKCC’s new Executive Director. Tell us about your new role and a little bit about the mission of the IKCC. I was appointed at the beginning of February as the Executive Director of IKCC to pursue...

Voice of Kidney Cancer – Tom Stark

The first 60-odd years of my life were notably free of health concerns.  Some sinus issues and headaches associated with them, but nothing that caused me to be hospitalized or receive any sort of medical treatment to speak of. I had my first surgery ever in 1984 (age 36) to remove huge bunions from both feet. Otherwise, nothing to speak of. I smoked from my teens until 1984 – the surgery kept me i...

Voice of Kidney Cancer – Julia Berger

On June 25th 2018, a 16cm malignant tumor was discovered by chance on my left kidney: I had just turned 47 years old. Our family had relocated from Los Angeles to Munich, Germany, just 10 months prior, and our life in Germany was still new to us: Our kids, 6, 9, and 11 at the time, were about to complete their first year of school here, and we had all been looking forward to an easier, more settle...

Voice of Kidney Cancer – Bennedikte Sogaard Pederson

Bennedikte is a stage 4 kidney cancer patient in Denmark. She shares her thoughts on ‘hope’ and survivorship. Fourteen months ago I found a big bump on my neck, and was diagnosed with kidney cancer that had grown into the liver and spread to the lymph nodes and bones.  So instead of being a healthy 48 year old woman, I am now a stage 4 cancer patient doing life-prolonging treatment. I’...

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