Author: KCCure

Voice of Kidney Cancer – Caroline Sample

My kidney cancer journey was preceded by breast cancer, which was caught early through a routine mammogram. After two surgeries I returned to work in January 2010, the same month I celebrated my 60th birthday and my cancer-free status. We had learned much, including how to advocate for ourselves, ask for help and support and to celebrate every bit of good news. The thrill didn’t last long. One mon...

Voice of Kidney Cancer – Bryn Jones

Bryn is a member of KCCure’s Benign Renal Mass Community.  He shares his story of being diagnosed with kidney cancer, only to learn following surgery that his masses were benign oncocytoma. Many patients struggle with anxiety and guilt after such an experience. KCCure is committed to supporting these patients and working to better identify gaps in care for newly diagnosed patients preparing ...

KCCURE APPLAUDS FDA APPROVAL OF NEW COMBINATION THERAPY FOR ADVANCED KIDNEY CANCER

Washington, DC, ——– – The Kidney Cancer Research Alliance (KCCure) welcomes the U.S. Food and Drug Administration (FDA) decision to approve pembrolizumab (KEYTRUDA) in combination with axitinib (INLYTA) as first-line treatment for patients with advanced renal cell carcinoma (RCC).   Pembrolizumab is an anti-PD-1 checkpoint inhibitor that helps the immune syste...

Non-Clear Cell Response Rate Chart

This chart lays out non-clear cell response rates for two kidney cancer clinical trials that were presented at ASCO-GU 2019. The Keynote 427 trial for pembrolizumab (Keytruda) as monotherapy and the Calypso trial combining savolitinib (MET inhibitor) and durvalumab (PD-1 inhibitor).

Voice of Kidney Cancer – Rahson Taylor

Rahson is battling a rare form of kidney cancer called Hereditary Leiomyomatosis and Renal Cell Cancer or HLRCC.   HLRCC is a rare genetic condition that increases the risk of developing kidney cancer.  HLRCC is caused by mutations in a gene called fumarate hydratase (FH) gene. Rahson’s journey began after experiencing symptoms of nausea, significant lower back pain, and blood in his urine. ...

Voices of Kidney Cancer

KCCure wishes to thank everyone in the kidney cancer community for sharing their voices in March for Kidney Cancer Awareness Month. We received more stories than there are days in March!!  If you sent us a story and it has not been published yet, we have it saved for publication at a later date. Why do we publish stories? Each story is a reminder that no one is alone in the fight against kidney ca...

Voice of Kidney Cancer – Aaron and Kim

My husband Aaron was diagnosed with stage 4 kidney cancer in February of 2018. A cough that just wouldn’t go away led to a chest x-ray that showed nodules in his lungs. The doctors ordered a CT scan that revealed a mass on his kidney.    I’ll never forget that life-changing phone call when Aaron called to tell me that the doctors suspected cancer. I took an emergency flight from Clevel...

Voice of Kidney Cancer – Larry Inman

What’s the right thing to say to a kidney cancer patient? It’s not always easy to know. Larry Inman shares his advice. Diagnosed with kidney cancer in June of 2017, I had surgery to remove it in August.  I thought I had a clean slate, but was diagnosed with metastatic cancer in December of that year.  I am blessed beyond merit by the support system I enjoy and am certain I would not ge...

Voice of Kidney Cancer – David Adams

Dave shares his story of being diagnosed with stage 4 Translocation Renal Cell Carcinoma, a rare form of kidney cancer.  My Cancer Journey… In March, I will be celebrating – If that’s what you want to call it – my 2 year anniversary of fighting cancer. Two years ago, I was 39 years old, and literally in the best shape of my life. I worked out 5-6 days a week, ate healthy (most of...

Voice of Kidney Cancer – Tanner Miller

Tanner Miller shares his story about how an RMC clinical trial at MDAnderson Comprehensive Cancer Center is shrinking his tumors and giving him hope for the future. My dream was falling into place, rounding out my senior year of college at Kansas State University with a couple of classes to complete… future job in financial advising/commodities and then September 22, 2015, arrived. “The worst day ...

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