Author: KCCure

Voice of Kidney Cancer – Marta Szulc

KCCure is a proud member of the International Kidney Cancer Coalition (IKCC), an independent international network of patient organisations that focus on kidney cancer. Learn more about Marta Szulc, IKCC’s new Executive Director. Tell us about your new role and a little bit about the mission of the IKCC. I was appointed at the beginning of February as the Executive Director of IKCC to pursue...

Voice of Kidney Cancer – Tom Stark

The first 60-odd years of my life were notably free of health concerns.  Some sinus issues and headaches associated with them, but nothing that caused me to be hospitalized or receive any sort of medical treatment to speak of. I had my first surgery ever in 1984 (age 36) to remove huge bunions from both feet. Otherwise, nothing to speak of. I smoked from my teens until 1984 – the surgery kept me i...

Voice of Kidney Cancer – Julia Berger

On June 25th 2018, a 16cm malignant tumor was discovered by chance on my left kidney: I had just turned 47 years old. Our family had relocated from Los Angeles to Munich, Germany, just 10 months prior, and our life in Germany was still new to us: Our kids, 6, 9, and 11 at the time, were about to complete their first year of school here, and we had all been looking forward to an easier, more settle...

Voice of Kidney Cancer – Bennedikte Sogaard Pederson

Bennedikte is a stage 4 kidney cancer patient in Denmark. She shares her thoughts on ‘hope’ and survivorship. Fourteen months ago I found a big bump on my neck, and was diagnosed with kidney cancer that had grown into the liver and spread to the lymph nodes and bones.  So instead of being a healthy 48 year old woman, I am now a stage 4 cancer patient doing life-prolonging treatment. I’...

Voice of Kidney Cancer – Clive Hodson

Clive shares his story of being diagnosed with a small renal mass while undergoing treatment for prostate cancer. Together with his doctors, Clive decided that active surveillance was preferable to immediate surgery. In January of 2020 my wife, Michelle, suggested that I take up painting to ease my mind. Michelle has been involved with acrylic painting as a hobby for many years. I decided her sugg...

Voice of Kidney Cancer – Marg Healy

Marg is a biologist in Australia who has devoted her life to seabird research and rehabilitation. But everything changed when she was diagnosed with stage 4 Renal Cell Carcinoma (RCC). Hi all, my name is Marg Healy, I was born in Kenya, grew up in Sierra Leone and am now an Australian biologist. I’m 63 years old and about to celebrate (?) 3 years with stage 4 Renal Cell Carcinoma (RCC) with exclus...

Voice of Kidney Cancer – Bobby Taber

I was diagnosed in February of 2017. I had a radical right nephrectomy. I was told it was stage 1 with clear margins, no further treatment necessary.  In June of 2018, I went to the doctor for lower back pain. They found a large tumor on my right iliac. After a bone biopsy, I was told I had stage 4 RCC with metastasis to my iliac, lungs, left adrenal, sternum, and a few other spots that I can...

Voice of Kidney Cancer – Katie Coleman

I’m a 29 year old newlywed with a brand new stage IV kidney cancer diagnosis, hot off the press! Some call my case the Loch Ness monster due to the super rare nature of my subtype but we’ve named the tumor on my right kidney Newman – he’s a big fella (12cm)! It’s been a rough couple of months that’s often felt like pure torture at moments, waiting for my treatment plan and not knowing how ag...

Voice of Kidney Cancer – Ryan Scarlata

I’m feeling a lot of things as I lie here wide awake thinking about this exact moment last year. It was the eve of my partial nephrectomy. My husband was asleep next to me, and my mom who flew 1,100 miles to be by my side was asleep in the next room while I remained awake (as I am now). One year. I’ve made it a year! A truly bizarre, startling, heartbreaking, stressful, but unexpectedly accomplish...

Voice of Kidney Cancer – Silvia Stangalini

Silvia shares her story of how treatment with Nivolumab and Tivozanib resulted in a complete response of her kidney cancer. I never thought I would be sharing this when I was diagnosed with Stage 4, Grade 4, clear cell renal cell carcinoma with sarcomatoid features February 16, 2018. The tumor was 7.5 cm and I had mets to one ovary, my liver and both lungs. After 5 months of Afinitor +Lenvati...

Voice of Kidney Cancer – John Ferrell

Deciding whether or not to get the COVID-19 vaccine is something that many people struggle with – but the decision is even more difficult for kidney cancer patients. I was originally diagnosed in 2010 with Stage III Clear Cell RCC and had my right kidney removed. My cancer returned in 2017 and metastasized to my lungs and pancreas.   I started in a clinical trial right away and left the tria...

Voice of Kidney Cancer – Lori Evans

Lori was told by multiple doctors that her renal mass was kidney cancer. Following surgery that involved significant complications, she found out it was a benign oncocytoma. I went to the ER after coughing up some blood due to a very bad cold. I wasn’t prepared for the words I heard next. On the x-ray, they saw a mass in the top left portion of my kidney. The doctor read the results to us verbatim...

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