Author: KCCure

Voice of Kidney Cancer – Immunosuppression and COVID-19

Today’s Voice of Kidney Cancer is not one story, but many stories. We all are struggling with how our individual lives have changed in the wake of the COVID-19 pandemic. Schools have closed, travel bans are in place, the uncertainty is wreaking havoc on the world economy. Today we profile three families who are uniquely impacted by the outbreak due to immunosuppression. Mary’s husband Rick was dia...

Voice of Kidney Cancer – Denise Trowbridge

In June 2017, I went to the hospital for a kidney stone and left with a diagnosis of stage 1 clear cell renal cell carcinoma. Two weeks later, I had a full nephrectomy and was told that because I was healthy, young, and had never had a health problem—not so much as a cholesterol number out of line—I’d likely never have to worry about kidney cancer ever again. Sadly, that nephrectomy was a be...

Voice of Kidney Cancer – Chris Upp

“It’s a marathon, not a sprint…” Back in August of 2014, when my journey began, I was getting ready to turn 41 years old. I had just had my first annual physical since being a teenager and passed with no issues. A few days after that appointment, I started having dull stomach pains and thought it might be food related. As the pain persisted throughout the day, I began to suspect it might be a...

Voice of Kidney Cancer – Karen Gibson

Fifteen years later,  I am astonished at how my life has been impacted and changed by a kidney cancer diagnosis. In 2005, I was 45, with a husband and young daughter. After complaining about a hard lump on the left side of my body, I was diagnosed with a 13 cm mass on my kidney. I had a radical nephrectomy; pathology confirmed stage 2, clear cell renal cell carcinoma. There is actually a great pro...

Voice of Kidney Cancer – Mike Rizzo

I was diagnosed two years ago with a 12.5cm pt3a n1 unclassified renal cell carcinoma. I went to Memorial Sloan Kettering (MSKCC), where Dr. Russo performed my surgery and Dr. Motzer is my oncologist.  Going into the surgery, I wasn’t really that worried. But when the pathology came back, everything changed. Seeing the words unclassified RCC terrified me. I couldn’t think about anything other than...

Voice of Kidney Cancer – Ilene Alperstein

I was diagnosed on September 13, 2019 with stage 4 renal cell carcinoma (RCC). When they found it, the kidney mass was over 12 cm. Surgery wasn’t recommended because the tumor had spread to the duodenum and other areas in the abdomen. Internal bleeding had caused my hemoglobin to drop to 5.0, which made me almost pass out – which is what sent me to the emergency room in the first place....

Voice of Kidney Cancer – Scott Sabados

It’s weird how I used to take the small things in life for granted. Like ice fishing. I was on the ice starting at seven, maybe eight years old. My three boys are the same way.  Now they are men. Two of them have moved out of the small town we live in. Having the middle boy drive four hours just to fish with me, his dad, makes me feel like I took a lot of in my life for granted and the way I...

Voice of Kidney Cancer – Jean Obermier

My journey with clear cell renal cell carcinoma (ccRCC) started on February 2, 2017. I had foot surgery on November 30, 2016. During a follow-up exam from this procedure, my physician palpated my abdomen and he told me I had an enlarged liver.  I had an ultrasound to investigate, which showed a 9.5 cm mass on my right kidney.  I had a right radical nephrectomy on April 3rd. Then a left adrenalecto...

Voice of Kidney Cancer – Robert Ramos

My father was diagnosed with kidney cancer in September 2017. He had a radical nephrectomy, removing his left kidney. His six-month check up scans showed that cancer had spread to his lungs and brain. My father died a little over a year after his diagnosis and just a few months before I was diagnosed with the same disease. I was diagnosed with kidney cancer in October 2018. That same month I had a...

Voice of Kidney Cancer – Yara Robertson, M.D.

In May of 2018, I developed left lower back pain that lasted 3 days. The pain was so severe that when I would take a deep breath, it would just grip me. I assumed it was a kidney stone and went in for a CAT scan. Instead of a kidney stone, the scan showed a mass measuring 2.5 cm on my left kidney. The radiologist thought it was possibly a cyst that had ruptured and suggested an ultrasound to bette...

Voice of Kidney Cancer – Trela and Steve

It is just past 2 a.m. I am sitting in the hospital listening to Steve snore. A bit over 20 years listening to it every night. But right now to me it is just the best sound in the world. Wednesday morning was his nephrectomy. To remove the kidney, open heart surgery, and then I can’t remember the name of the tube from the kidney to the heart but that was filled with tumor as well! There was ...

Voice of Kidney Cancer – Vicki Major Dean

I found out I had stage 4 renal cell carcinoma (RCC) days after my husband died of esophageal cancer. I never felt so alone in my life. I read the results of a chest x-ray that I had gotten on my six month check-up. Neoplastic abnormalities, including changes associated with metastatic disease. The silence made it hard to breathe. I buried my husband and went the next day for a CT. I didnR...

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