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KCCure Launches National Kidney Cancer Patient Advisory Board

WASHINGTON – The Kidney Cancer Research Alliance (KCCure) announced today the formation of a national kidney cancer Patient Advisory Board; a non-voting body made up of patients, caregivers and leaders in the cancer community.  The board will be led by patient advocates Michael B. Lawing and Debra Gottsleben.  Members will provide guidance to KCCure’s research agenda, assist in developing patient education materials, enhance and expand outreach to other patients, and participate as reviewers in KCCure’s research grant process. “Patient expertise is an untapped resource when it comes to kidney cancer,” said KCCure President, Dena Battle.  “This board is an invaluable part of our effort to effectively tailor research priorities based on the needs of all kidney cancer patients. I’m grateful t...

KCCure President Dena Battle Elected to National Cancer Institute’s Renal Task Force

WASHINGTON - Kidney Cancer Research Alliance (KCCure) President Dena Battle has been elected to the National Cancer Institute’s Renal Task Force to serve as one of two patient advocates on the panel. 

Take our Survey and help us improve surveillance in Kidney Cancer

This year, 60,000 Americans will be diagnosed with kidney cancer.  Many of these cancers will be found incidentally – almost by accident.  Many patients are completely unprepared and don’t know what questions to ask or what kind of follow-up they should receive after their diagnosis.  While multiple guidelines exist, there isn’t a single uniform or standard plan for patients.  In an effort to improve that – we’re doing something that no one else has done.  We’re asking patients to share their experiences and to tell us what they want and what the health care system can do better!  If you’ve been diagnosed with RCC, please take a moment to fill out our survey and share with others!  By doing so, you’ll help magnify the voice of all patients. C...

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