Patricia Nichols is a survivor of chromophobe renal cell carcinoma. As a young single mother, she struggled with access to care and the fear and anxiety that go along with a cancer diagnosis. Today, because she found an exceptional care team, she's free of cancer. This is her story.
Robin Martinez is the coordinator of communities at SmartPatients.com and has been counseling kidney cancer patients for over twenty years. Prior to launching SmartPatients, she was co-listowner for the Kidney-One mailing list. This is her story.
The story below was written by a kidney cancer patient who asked to remain anonymous. Many patients struggle daily with the issue of when it's safe to reveal their diagnosis. They have valid concerns about how cancer will impact their relationships, their employment status, their financial security. Not being able to share their story with others makes the journey even harder. It's one of the reasons that we encourage all patients to find a patient community to be a part of. You are not alone. This is the voice of kidney cancer.
Bryan Lewis was diagnosed with kidney cancer when he was just 46 years old. At the time he was the new father of one-year old twins and had recently been promoted at a leading national trade association. He is married to a wonderful and smart woman, and lives in Philadelphia, Pennsylvania. Today, he is the voice of kidney cancer on Capitol Hill leading the Kidney Cancer Action Network. He also serves as a member of the KCCure Patient Advisory Board. This is his story.
Today's Voice of Kidney Cancer is Dr. Elizabeth (Lisa) Henske, who runs the Henske Lab at Brigham and Women's Hospital and Harvard Medical School in Boston. One of her principal areas of research is chromophobe renal cell carcinoma (chRCC). She's also one of the newest members of the KCCure scientific advisory board. We're grateful to Dr. Henske for donating her time to answer a few questions about her work in chRCC.
When Irfan was diagnosed with stage 4 kidney cancer, doctors left him with little hope. But he perservered and sought out treatment with high dose IL-2. Eight years later, he's still free of disease. Read his amazing story of kidney cancer survivorship.