Author: KCCure

Voice of Kidney Cancer – Ryan Scarlata

I’m feeling a lot of things as I lie here wide awake thinking about this exact moment last year. It was the eve of my partial nephrectomy. My husband was asleep next to me, and my mom who flew 1,100 miles to be by my side was asleep in the next room while I remained awake (as I am now). One year. I’ve made it a year! A truly bizarre, startling, heartbreaking, stressful, but unexpectedly accomplish...

Voice of Kidney Cancer – Silvia Stangalini

Silvia shares her story of how treatment with Nivolumab and Tivozanib resulted in a complete response of her kidney cancer. I never thought I would be sharing this when I was diagnosed with Stage 4, Grade 4, clear cell renal cell carcinoma with sarcomatoid features February 16, 2018. The tumor was 7.5 cm and I had mets to one ovary, my liver and both lungs. After 5 months of Afinitor +Lenvati...

Voice of Kidney Cancer – John Ferrell

Deciding whether or not to get the COVID-19 vaccine is something that many people struggle with – but the decision is even more difficult for kidney cancer patients. I was originally diagnosed in 2010 with Stage III Clear Cell RCC and had my right kidney removed. My cancer returned in 2017 and metastasized to my lungs and pancreas.   I started in a clinical trial right away and left the tria...

Voice of Kidney Cancer – Lori Evans

Lori was told by multiple doctors that her renal mass was kidney cancer. Following surgery that involved significant complications, she found out it was a benign oncocytoma. I went to the ER after coughing up some blood due to a very bad cold. I wasn’t prepared for the words I heard next. On the x-ray, they saw a mass in the top left portion of my kidney. The doctor read the results to us verbatim...

Voice of Kidney Cancer – Dan Lampinen

Psalm 46:10 10 Be still, and know that I am God: I will be exalted among the heathen, I will be exalted in the earth. My faith journey started 53 years ago, the day I was born I was 2 lbs 10 oz., and had a double hernia, and have been a positive fighter since day one! A year ago November 2019 after not feeling well for over 7 months, I had lost 70 lbs in 6 months, a CT scan finally revealed that I...

Voice of Kidney Cancer – Debbie Talcott

Debbie Talcott on her ranch in Montana. Diagnosed with Wilm’s tumor as a child, she was then diagnosed with metastatic RCC fifty-five years later. She has responded well to systemic therapy – but still hopes for a cure. My name is Debbie Talcott, in 1962 at the age of 4.5 years, after being treated several weeks for pneumonia, exploratory surgery was performed, and I was finally diagno...

Voice of Kidney Cancer – Chris Jones

Cancer isn’t funny. But keeping a sense of humor when facing a diagnosis can help reduce anxiety – and maybe even help move up a surgery date!   “Why did the large bucket think the small bucket was sick? It was a little pail.” What do bad jokes have to do with kidney cancer? Don’t worry – I’ll get to that part at the end of my story. My story starts in early December of last year...

Voice of Kidney Cancer – Steve Block

I never thought I would be sharing the story of my metastatic RCC diagnosis. I am a quiet guy regarding personal stuff.  My wife has always been the social media junky who shares the family’s triumphs, community festivities, and the kids activities with others ~ even strangers in on-line cancer communities LOL.  But here I go.  Here is how my RCC journey began. My name is Stev...

Voice of Kidney Cancer – Tracie Titus

  When Tracie’s husband was diagnosed with bilateral, multifocal papillary type 1 renal cell carcinoma, she refused to stand-by – instead she stood up. Through research and outreach, she and her husband were able to get a second opinion, which resulted in a dramatically different outcome.    Standing UP October 20, 2020 – 8:07pm: “The renal biopsy revealed a malignant tumor....

COVID-19 Vaccine – Kidney Cancer Patient Survey

As a follow-up to our survey from March 2020, we sought to get updated views from our patient communities regarding concerns and anxieties related to the COVID-19 virus as well as to get additional thoughts about the vaccine roll-out. Similarly to our March survey, over 500 patients participated. Eighty-seven percent of patients were from the United States. People from 47 states participated. The ...

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