Author: KCCure
KCCure Represents Patients at AUA 2018
For the second year in a row, KCCure represented kidney cancer patients at the annual meeting for the American Urological Association. This year, KCCure was instrumental in planning for the meeting by serving on the AUA Steering Committee for Patient Advocacy Efforts.
KCCure President Dena Battle elected to NCI Genitourinary Steering Committee (GUSC)
Kidney Cancer Research Alliance (KCCure) President Dena Battle has been elected to represent patients on the National Cancer Institute's Genitourinary Steering Committee(GUSC). The primary focus of the committee is to address design prioritization and evaluation of concepts for phase 2 and 3 clinical trials in GU cancers. Her term is effective May 25, 2018 and will last through May 2021.
KCCURE HAILS FDA APPROVAL OF FIRST COMBINATION IMMUNOTHERAPY FOR FIRST LINE RENAL CELL CARCINOMA
“Today’s decision by the FDA is a game-changer for patients and physicians managing advanced kidney cancer,” said Hans Hammers M.D., Ph.D., KCCure co-founder and senior co-author of the clinical study for the combination.
Voice of Kidney Cancer – Deb Gottsleben
Deb Gottsleben is co-chair of the KCCure Patient Advisory Board and a passionate advocate for better care for patients with newly diagnosed renal tumors.
Voice of Kidney Cancer – Paul Vollmer
Today’s Voice of Kidney Cancer is a truly unique story of spontaneous remission. For the skeptics among us it is a story that one would expect to find in the sensationalist headlines of the tabloids in the supermarket checkout lanes. However, the story is real. This is Paul's story.
Voice of Kidney Cancer – Larry Mazella
Today's Voice of Kidney Cancer, Larry Mazella shares how he was diagnosed and how he chose to participate in two different kidney cancer clinical trials. Even though his first treatment option wasn't successful, he was able to enroll in a second clinical trial that is continuing to shrink his cancer.
Voice of Kidney Cancer – Bill Paseman
Today's Voice of Kidney Cancer is Bill Paseman. In addition to being a survivor of papillary kidney cancer, he also serves on the KCCure Patient Advisory Board. Read Bill's story and how he's trying to use Silicon Valley style events to gather more information about this rare subtype of kidney cancer.
Voice of Kidney Cancer – Kathleen Farrell
Today's Voice of Kidney Cancer is Kathleen Farrell. March 28th is her ten-year kidney cancerserversary. Ten years later, she shares the ups and downs of her journey. I think we all can agree - her spirit is inspiring!
Voice of Kidney Cancer – George Hall
George Hall is a stage IV kidney cancer survivor and member of the KCCure Patient Advisory Board. He shares his story and how having a committed caregiver and trust in his medical care team have contributed to a hopeful outlook.
Voice of Kidney Cancer – Team Chema
Maria Teresa Fahy lost her beloved father, Chema, to kidney cancer. But in that loss, she found strength in others and today is devoted to kidney cancer patient advocacy. In addition to running the Facebook page Team Chema, she also serves on the KCCure Patient Advisory Board.
Voice of Kidney Cancer – Johanna Allen
Today's Voice of Kidney Cancer is Johanna Allen. She writes about losing. her mother to the disease and how hard it was when they ran out of treatment options. Her story is a call to action for more kidney cancer research - so no doctor has to say and no patient has to hear, "we have no more options." We couldn't agree more. Thank you Johanna.
Voice of Kidney Cancer – Patricia Nichols
Patricia Nichols is a survivor of chromophobe renal cell carcinoma. As a young single mother, she struggled with access to care and the fear and anxiety that go along with a cancer diagnosis. Today, because she found an exceptional care team, she's free of cancer. This is her story.