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A Community of Hope for Kidney Cancer

A Community of Hope for Kidney Cancer

In the weeks after my husband’s kidney cancer diagnosis, I went back and forth between sheer terror and devastating anguish. There weren’t many moods in between. I couldn’t function at work, and I wasn’t much better at home.

I did what any normal person would do in that situation. I went on Facebook.

I found a kidney cancer group and picked out a woman who looked to be about my age and sent her a message. It was a desperate plea for help. I was seeking reassurance, a message of hope – I needed to know that I wasn’t alone. I needed to be connected with people who understood what I was going through, and I was lucky that day because Liz Lewis knew exactly what I was going through. Liz wrote back immediately. She connected me with an amazing community of patients and caregivers dedicated to supporting one another. Connecting with Liz didn’t take away the cancer or the fear, but knowing I wasn’t alone allowed me to find my footing and navigate a path forward.

Yesterday, when we announced the launch of KCCure, a nonprofit dedicated to raising funds for kidney cancer research, we were overwhelmed with the generosity of those who support this cause. More than that, however, we were deeply touched by messages sent to us through the website, Facebook and Twitter—messages from people struggling with the newness of diagnosis, from patients who are bravely surviving cancer every day, and from those who have lost loved ones to this disease. It reminded me of that day I reached out to Liz.

Wherever you are in this journey, I’m so grateful that this community of hope exists. And we, KCCure, exist for you.

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Dena Battle is the President of KCCure. She also serves on the Advisory Board for the Johns Hopkins Sidney Kimmel Cancer Center and as a member of the Patient and Family Advisory Council.
  • Rosemary

    Thank you Dena! I had kidney cancer I’ve been NED for one year. But worse then me with kidney cancer, my oldest son,37, had kidney cancer. He is a young father of two boys. I had partial neph June 2015. My son full neph right kidney Nov. 15, 2016. Chris, my son, was diagonsed stage 3 renal clear cell carcinoma. Me stage 3 chromophobe. Needless to stay this past year has been a whirlwind of emotions. I am at UCLA for follow up care. My son ….now Lord-willing will be with MD Anderson. Its been hard keeping up with my own care but my son tends to stay in denial. Like your husbands first urologist his doctor said …”Okay see you in a year.” . I of course have done the research and know that is not the way to go. His wife unfortunatley feels it is best to let Chris make decisions for himself. I say NAY, NAY. This mama bear will not sit back and be quiet.
    I appreciate all you are doing and I look forward to following and supporting your cause.

    Of course

  • Lisa Morton

    So proud of you and your dedication to this community of hope. I think I would have been far more free of the sadness from my dadʻs disease if my family had a “Dena” in our lives 30 years ago. So Battle on, Dena. For those of you who are reading this and are in that unbelievable state of fear and angst – get connected and find yourself a “Dena”.

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