Leiomyomatosis

Rahson lost his battle to a rare form of kidney cancer called Hereditary Leiomyomatosis and Renal Cell Cancer or HLRCC in December 2019. His courageous battle will not be forgotten.    Rahson’s journey began after experiencing symptoms of nausea, significant lower back pain, and blood in his urine.  Initially, his doctors were confident that they could remove the tumor that was on his kidney but after further tests, they determined that the cancer was much more serious and that they couldn’t even perform the surgery at their location. He was then referred to another hospital where things really started to progress.  After a few indefinite diagnoses to include Renal Medullary Carcinoma and Collecting Duct, genetic testing finally confirmed his diagnosis in January 2018.  Since then, h...