Author: KCCure

COVID-19 Update – Kidney Cancer Drug Supply

As the COVID-19 crisis has unfolded, kidney cancer patients have been impacted in many ways. Many patients have expressed concerns about kidney cancer drug supply issues as a result of the pandemic. Below are statements from companies producing the most widely used treatments for advanced RCC. At this time, all information indicates that supply lines for kidney cancer treatments remain intact. We ...

COVID-19 Update – Elective Surgery

As the COVID-19 crisis has unfolded, hospitals around the country are announcing delays, and in some cases, even banning “elective surgeries.” The Centers for Medicaid and Medicare Services (CMS) has released guidance for hospitals on limitations for these procedures to preserve resources during the COVID-19 pandemic. What is elective surgery? Many patients are surprised to learn that most surgeri...

Voice of Kidney Cancer – Denise Thompson

It’s interesting and bonding to read about similar and difficult experiences we are all having during this pandemic. But the hardest thing for me right now is my own mindset. I guess I didn’t come into the pandemic with great reserves of strength. Last July, we moved three to four hours away from our older son and his daughters, who are now in college, as well as our own daughter, in o...

Voice of Kidney Cancer – Joanne DiFulvio

In 2006, I was recovering from unrelated surgery when I became ill. I went to the ER where a CT exam was ordered to see if I had torn internal sutures. It was during that exam when it was discovered that I had a 6CM mass on my left kidney. They call it incidental finding.  I was terrified. I was only 58 years old at the time. My own mother passed away from cancer. All I could think of is how ...

Voice of Kidney Cancer – Joanne Muscat

Today was my 5 year diagnosis anniversary. Wow, what a journey… Considering they only gave me an 8% survival rate for stage 4 metastatic RCC. I’m not in the clear and never have been, but it’s been an amazing experience. I’ve traveled the world, and lived, laughed and loved like never before. Today was also my ct scan day coincidentally. I get results on Thursday.  These re...

Voice of Kidney Cancer – Lisa Condon

My cancer story started June 2nd, 2018. I was 47 years old at the time and a busy full-time working wife and mother of 4 children ages from 13-30 living in Minneapolis, Minnesota.  On May 29th, 2018, I went into my local Urgent Care as I had been struggling with a reoccurring bladder infection and some constipation. The urgent care physician ran the appropriate tests, and everything came back norm...

Voice of Kidney Cancer – Joe Torpey

I am 66 years young. I was incidentally diagnosed in the emergency room in Sept 2019 while getting an ultrasound for a shooting pain on my right side from under my arm to my waist. The doctor came in and said we don’t see anything that would cause this pain, possibly a pulled muscle, but we did find a 6.5 cm growth on your left kidney that you should get checked out. The urologist I chose was Dr. ...

Voice of Kidney Cancer – Constance Robinson

My name is Constance Robinson. I was diagnosed with chromophobe renal cell carcinoma (chRCC) in 2006 at the age of 30.  Unfortunately, I didn’t catch it fast enough to save my right kidney. I remember the symptoms starting with pain in my right side. I didn’t think anything of it at the time because I used to work out all the time. I thought I had pulled a muscle from my TaeBo exercise routine.&nb...

Voice of Kidney Cancer – Joyce’s Story

Four years ago today my husband went to the emergency room for what I was certain was kidney stones. Flank pain and bloody urine that came on quickly. Everyone at the ER agreed until the CT scan came back. I’ll never forget the first time we heard the diagnosis. Kidney cancer. That night was one of the longest in our lives. I remember curling up next to him on the stretcher trying to find some com...

Voice of Kidney Cancer – Immunosuppression and COVID-19

Today’s Voice of Kidney Cancer is not one story, but many stories. We all are struggling with how our individual lives have changed in the wake of the COVID-19 pandemic. Schools have closed, travel bans are in place, the uncertainty is wreaking havoc on the world economy. Today we profile three families who are uniquely impacted by the outbreak due to immunosuppression. Mary’s husband Rick was dia...

Voice of Kidney Cancer – Denise Trowbridge

In June 2017, I went to the hospital for a kidney stone and left with a diagnosis of stage 1 clear cell renal cell carcinoma. Two weeks later, I had a full nephrectomy and was told that because I was healthy, young, and had never had a health problem—not so much as a cholesterol number out of line—I’d likely never have to worry about kidney cancer ever again. Sadly, that nephrectomy was a be...

Voice of Kidney Cancer – Chris Upp

“It’s a marathon, not a sprint…” Back in August of 2014, when my journey began, I was getting ready to turn 41 years old. I had just had my first annual physical since being a teenager and passed with no issues. A few days after that appointment, I started having dull stomach pains and thought it might be food related. As the pain persisted throughout the day, I began to suspect it might be a...

Lost Password

Register

Subscribe for updates!