When faced with a new cancer diagnosis, our research shows that patients experience trauma, grief and feelings of isolation. To help combat the emotional toll of cancer, we encourage patients to connect with one another and to share their stories. These actions can help families impacted by kidney cancer feel less alone and are an important component of survivorship.
In-person cancer support groups can be hard to find for kidney cancer patients because it’s a rare disease. We encourage patients to connect with others through on-line patient communities; including:
KCCure - Papillary Kidney Cancer Patient Community
The KCCure Papillary Kidney Cancer Community is a closed group on Facebook where patients who have been diagnosed with papillary kidney cancer can connect with others who are managing the same rare diagnosis.
KCCure - Unclassified RCC Kidney Cancer Community
This is a private Facebook community dedicated to patients and caregivers dealing with the diagnosis of unclassified renal cell carcinoma, a very rare subtype of RCC. This is a place to share your story, seek advice and comfort from others and to learn more about this diagnosis.
KCCure - Oncocytoma and Benign Renal Tumor Patient Community
This private Facebook patient community is dedicated to supporting individuals who have been diagnosed with and/or treated for an oncocytoma, angiomyolipoma or any other benign renal mass. We’re here to support patients dealing with anxiety associated with a diagnosis, managing active surveillance of a renal mass, dealing with surgery or recovery from a renal mass and follow-up surveillance for renal masses.
Smart Patients is an online community for patients and families affected by a variety of illnesses, with a large community of kidney cancer patients. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life.
Renal Cell Carcinoma Support Group
This a private Facebook community dedicated to supporting others with RCC, sharing stories and treatments and being there for each other.
Kidney Cancer - Patients, Caregivers and Survivors
A private Facebook community providing a supportive place of peace to find information, guidance, commiserate, or seek comfort and solace about kidney and related cancers. Want to complain? Ask? Vent? Cry? You’re in the right place.
Kidney Cancer Sucks!!! but we will WIN
This Facebook group is set up for privacy so that our members can come here with private questions and concerns or just to vent with out the whole world knowing you are having a hard day… Kidney cancer does suck…and we will win…but we need each other
Patient (Warriors) Living with Stage 4 Renal Cell Carcinoma
A private Facebook community for Patients that have Stage IV Renal Cancer sharing information to create the best life possible. We have many sites for people that both have and are affected by different stages, but few that are for the patients themselves. Sometimes we just need to speak to people that actually have our same affliction.
Kidney Cancer Survivors
Our Goal is to provide Open Kidney Cancer Support to Patients, Families, Friends & Care Givers. (By this we mean we are a Public Group and Anyone can see the group, including members and their posts). A place where you can come gather and share information relating to Kidney Cancer.
Sickle Cell Trait and Renal Medullary Carcinoma Awareness
This private Facebook group was created as a place of discussion for individuals that are battling renal medullary carcinoma and their loved ones. We have noticed the lack of awareness within the country and it is our greatest hope to change that. We would like for this group to be a place where individuals can come to share information, seek guidance, chat, vent or grieve. We all have been affected by this disease in some way and we need a group just for US.
Chromophobe Kidney Cancer Support Group
This is an informal private support group on Facebook for those dealing with Chromophobe Kidney Cancer whether you are a loved one or the one with the disease. Thanks for joining us. We have heard this is a rare form of cancer so it will be nice to pool our experiences here.
Sarcomatoid Renal Cell Carcinoma
A closed Facebook group for Sarcomatoid Renal Cell Carcinoma cancer patients and caregivers to share information. Please respect each other’s information, as this is a private page, containing private information .. again this group is specific for SARCOMATOID RCC.
Xp 11.2 Translocation Renal Cell Carcinoma
This is a private Facebook group for patients or families influenced by xp11.2 translocation renal cell carcinoma.
Please note: The material on this site is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment for a specific medical condition. You should not use information on this website to diagnose or treat a health problem or disease and should consult with a qualified healthcare provider with any questions or concerns you may have regarding your condition.