KCCure

KCCure – Finding Quality of Life – Palliative Care

In the making a difference series, KCCure’s Director of Patient Engagement, Laura Loughlin, shares how connecting with palliative care improved her quality of life during radiation treatment, and explores how palliative care services can improve the quality of life for both patients and their families. When I was first diagnosed in 2016 with stage 4 RCC an oncologist told me that from that point forward my life would be a series of choices balancing quality vs. quantity of life.   When I was told this, I was hospitalized with side effects from my surgery and from high dose radiation to my thyroid due to a spread of the RCC.  My quality of life was poor, and I was offered palliative care.  At the time I was not aware of what palliative care was, but without a doubt palliative care become my...

Making a Difference – Rare Kidney Cancer Research

In the making a difference series, KCCure’s Director of Patient Engagement, Laura Loughlin, will be highlighting organizations making a difference in Kidney Cancer research. In this article we are profiling the work being done at The Rare Cancer Research Foundation (RCRF), with focus on their patient directed consent platform Pattern.org. The Rare Cancer Research Foundation (RCRF) is a 501(c)3 nonprofit organization, committed to helping advance research to find cures for rare and under-represented cancers, including rare Kidney Cancers. This is a critical need as collectively rare cancers are the leading cause for cancer death in the US. The RCRF recognized that to advance research in this area a vehicle that allows patients to authorize tissue donation and collaborate with researchers is...

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