Robin Martinez is the coordinator of communities at SmartPatients.com and has been counseling kidney cancer patients for over twenty years. Prior to launching SmartPatients, she was co-listowner for the Kidney-One mailing list. This is her story.
The story below was written by a kidney cancer patient who asked to remain anonymous. Many patients struggle daily with the issue of when it's safe to reveal their diagnosis. They have valid concerns about how cancer will impact their relationships, their employment status, their financial security. Not being able to share their story with others makes the journey even harder. It's one of the reasons that we encourage all patients to find a patient community to be a part of. You are not alone. This is the voice of kidney cancer.
Bryan Lewis was diagnosed with kidney cancer when he was just 46 years old. At the time he was the new father of one-year old twins and had recently been promoted at a leading national trade association. He is married to a wonderful and smart woman, and lives in Philadelphia, Pennsylvania. Today, he is the voice of kidney cancer on Capitol Hill leading the Kidney Cancer Action Network. He also serves as a member of the KCCure Patient Advisory Board. This is his story.
Laura Esfeller was diagnosed with stage 4 type 2 papillary kidney cancer when she was only 29 years old. She would later learn that she also has a rare genetic condition called Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), also known as Reed’s Syndrome. This is her story.
When Irfan was diagnosed with stage 4 kidney cancer, doctors left him with little hope. But he perservered and sought out treatment with high dose IL-2. Eight years later, he's still free of disease. Read his amazing story of kidney cancer survivorship.
Michael B. Lawing is a 20 year survivor of kidney cancer and a passionate patient advocate for others. In addition to his many roles in the cancer community, he is co-chair of the Patient Advisory Board for KCCure. We're grateful for his service. This is his story.